You have
been a milestone that has changed the perception that existed of human beings
before you made yourself known. Before, society was divided between capable
people and people with disabilities. Where the latter were cornered, as useless
beings, who had to be given food, clothing and footwear, but nothing more. They
were not productive as human beings. No one wondered what capabilities they
could develop within their limitations. They were not educated, because they
were thought to be incapable of learning.
But you appeared
in the media. They began to write about you. You were seen in public. We hear
the voice of a human being, whom despite the tremendous struggle you had with
your physical, gradually deteriorated, your mind was not only bright, but far
exceeded the limits and the intellectual capacities of the rest of humans.
You were the antithesis of the canon that mass media, had created on the perfect man in the 20th century. Your body was not muscular, nor strong, nor aesthetic, nor the tall nor handsome one sold in movies, but quite the opposite. It was the prison of your mind. Nor were you the typical father, the backbone of the family stability. You were not the strong and husky man who cares, but one who had to be cared for, loved and accepted with all his needs.
You created great
expectations for those of us who saw you or listened to you. Not all human
beings had to respond to pre-established canons to be valid. We reflected,
understood and coined new terms such as "diversity", "high
capacities", "accessibility", "tolerance", among
others.
I must confess that I have never read you. Not because I do not want to know what you have written. It's just that I could not. Since I was 8 to 16 years old I was the nanny, caregiver, hands and feet of someone much older than me. Thus, I have special sensitivity for human beings who cannot fend for themselves. If I had read something of what you wrote I would have had to do it crying, imagining you writing with all those difficulties that you faced each day to put one letter after another, or later, with that computer, reading your thoughts.
I must confess that I have never read you. Not because I do not want to know what you have written. It's just that I could not. Since I was 8 to 16 years old I was the nanny, caregiver, hands and feet of someone much older than me. Thus, I have special sensitivity for human beings who cannot fend for themselves. If I had read something of what you wrote I would have had to do it crying, imagining you writing with all those difficulties that you faced each day to put one letter after another, or later, with that computer, reading your thoughts.
I recognize that
you have made the information and communication technicians have racked their
brains to get you to communicate with the world. That is another of your
contributions to the world of technology. This caused us to coin a new concept
of "freedom", not based on the "freedom of physical
movement", but on the freedom of the movement and intellectual evolution
of the mind.
I admire you, too, for your struggle for life. In a society where life seems to lack all value. Where there is abortion, people are violated, killed, murdered, fought in wars, taken deadly drugs, committing terrorist acts, trafficking in human life, or committing suicide… It is very valuable that someone like you, who had a very poor quality of life, would cling to it with such a zeal.
I admire you, too, for your struggle for life. In a society where life seems to lack all value. Where there is abortion, people are violated, killed, murdered, fought in wars, taken deadly drugs, committing terrorist acts, trafficking in human life, or committing suicide… It is very valuable that someone like you, who had a very poor quality of life, would cling to it with such a zeal.
The media say
that you were a brilliant mind, but with a few friends. I
wonder what humor for chattering a human being can have in your difficult
physical circumstances. Would you also have to
be cheerful all day? Would you
have to pretend that the pain you felt was nothing? Should
you have acted as if you would not have liked to walk hand in hand, run, jump,
shave yourself, shower by your own, swim, ski, sit dawn quietly in a park and be
able to turn your head to watch the children play from here to there ... and
many other movements that most of us do automatically, without giving them the
value they have, until we lose the ability to do them? I
can understand that, having an intellectually developed mind like yours, your
emotive and affective part were fragile. It is impossible to be one
hundred percent in everything. I
know, from the experience I had with my mum’s aunt whom I took care of, that when
someone depends for almost everything of others, their humor becomes more and
more sour, and the relationships with your loved ones, more and more difficult.
Although
you and my aunt had completely opposite minds. Your
intellect was brilliant, hers, the poor one, who could not go to school, also
depended on me for me to read. She
liked that I did it, because it relieved her from being tied to her wheelchair,
and with my reading, she let her imagination fly through unknown worlds. So,
I understand the pleasure that you should have always felt for reading, for
taking your mind beyond our known world, to accept futuristic theories about
the human being, to lay the foundations for another kind of world.
Thank you for all you have contributed to the twentieth century, the twenty-first and the coming centuries.